If you or someone you care about has been through an eating disorder then you will be familiar with some of the challenges, both for the person and as a carer/supporter. Family relationships change as the situation can turn to crisis and recovery can seem distant. Parents, in particular talk about how they become a carer, with much of time and energy focused on the illness that is now a large part of their family’s daily experience. Working with families – providing information and education – is therefore key to recovery and can help parents to feel they have strategies to cope and in time, move back into their parenting role. In this context, the Bodywhys PiLaR programme has been underway for the past 5 years.
What other issues are out there? Did you know that athletes are at increased risk of developing an eating disorder? The science about eating disorders and sport is well-established. The consequences for an athlete’s health, performance and risk of injury are significant. Described as a ‘wake-up call’ because of its seriousness, the Female Athlete Triad (Triad), is where athletes experience an energy deficiency with or without disordered eating, menstrual disturbances and low bone mineral density. Research has moved towards the Relative Energy Deficiency in Sport (RED-S) model which is not gender specific and you may have seen highlighted by BBC News in December 2018. Understandably, it’s a difficult situation for both athletes and coaches. Does the athlete say something and risk losing their place on the team and an opportunity to train and compete? How does the coach approach an issue he/she knows little about and what helps an athlete return to their sport after treatment?
Next, how about the idea, as proposed by Dr. Scott Griffiths and colleagues that eating disorders are ‘moving targets’? Essentially, the heart of this perspective is i) that the manifestation of eating disorders is affected by the world around us and ii) the cultural and social forces through which we value and scrutinise men and women’s bodies also shift over time. Does this mean that eating disorders are qualitatively different to what they were a generation ago and what will they be like in the years ahead? Diagnostic criteria have evolved, certainly, as has treatment. Ultimately, we do not know enough about the extent to which eating disorders are affected by culture in the long term. Eating disorders have occurred in China, South America and Japan and are not, despite the myth, a problem confined to Western teenage girls.
The brain remains a key point of discussion. Most research has focused on anorexia, with evidence suggesting someone’s brain structure, when they are unwell, is different to those who do not have the illness. A 2018 study on the neurobiology of bulimia and binge eating noted that illness severity, the frequency of binge eating or bulimic episodes, was linked to neural changes, along with diminished attentional capacity and self-regulation.
What else? Sometimes people who been through treatment discuss their experience of weight restoration, with the sense that other issues were not adequately addressed. Following a meta-analysis of studies published from 1980-2017, psychologist Dr Stuart Murray commented on Twitter “Improvements in patient weight does not confer improvement in cognitive symptoms in #AnorexiaNervosa. We must elucidate mechanisms of cognitive AN symptoms, and altering these mechanisms must be the overall goal of treatment”.
Clearly, this is vital. We know how much of a hold an eating disorder can have over someone’s thoughts.
From another study published in 2018 (Cardi et al 2018) we know that some people with eating disorders experience social difficulties prior to the onset of illness, namely – a fear of rejection, feeling different from others and bullying and low self-esteem. It would be useful to tackle these issues from a prevention perspective. In light of these difficulties, addressing a person’s feelings and perception of social competence at all stages of the treatment process and recovery is key.
Lastly, even with difficult days, let us not forget the ordinary kindness of people with eating disorders. At a support group, person A said ‘don’t worry, it will be OK’, and person B said ‘thank you.’ This simple gesture of kindness can sometimes seem forgotten.
As #EDAW2019 begins, Bodywhys remains focused on the road ahead, by continuing to support people with eating disorders, families and working with the HSE to implement the national Model of Care for Eating Disorders.
If you need to talk.
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